The Patients Association is an organisation to collectively campaign for and support patients through the most common experiences felt across any condition. They have a really interesting pledge in their manifesto, "GP Duty to Refer",which focuses on getting healthcare professionals to signpost patients to relevant charities and support groups and sources of information.
Apparently only 2% of members of the Meningitis Trust were signposted there by doctors!
These invaluable resources need to be used, and awareness needs to be increased! The NHS can not 'commission volunterring' without letting people know about the vital services they are relying on!
Read the full details here: http://www.patients-association.com/Default.aspx?tabid=212