Friday, 28 February 2014

Optimising my self-management

I try and go on my recumbent exercise bike (a godsend for those of us who are orthostatically challenged like us POTSie's) regularly and normally manage several kilometers while reading the paper. I often wear my slippers and PJs.

So I do get on a bike, but what have I got in common with Froome and Cavindish et al of Sky Cycling Team? 

Thursday, 6 February 2014

Time to Talk

It has been more debilitating that any of my physical symptoms (including loosing movement in all limbs).
The side effects from the medications have been among the worst I have had.
It has flattened my ability to look after myself and self-manage my other conditions. 
The other 'treatments' have been the hardest things to do.
Maintaining the helpful management techniques each day often take all my energy & willpower.
I can't look after my other health conditions without addressing it., 
I find it surprisingly hard to utter the word itself out loud when referring to myself.