A tweet at the end of May from the extraordinary Dr Kate Granger (@GrangerKate) made me start to think about what is positive about our health situations:
"This week has been properly amazing. And it was all made possible by having cancer. There is definitely a #silverlining to all this..."
This post is also inspired by a few letters I have read recently, from a doctor to a chronically ill patient, from a chronically ill patient to a doctor, and by far the most powerful, a video produced by the wonderfully talented and creative people from Flack in Cambridge, the audio of which we used in our Quality and Recover workshop recently.
It's not often you have to write a letter to something that is so close to you, but I feel that it is a great chance to explore the relationship I have with my relapses.
For references, my relapses are triggered by travelling and sudden neck movements, and consist of loosing movement in my legs (and left arm). It is frequently accompanied by headaches, blurry vision and crippling fatigue for four or five days.