Tuesday, 22 December 2015

A Spoonie Guide to Moving House

I recently moved house. For most people, moving house is commonly described as one of the most stressful and exhausting things to do. So how do you manage when you are often exhausted by even very little things?!

I am very lucky to have the wonderful and wise Karen (@GleefulKaz) on the other end of a Skype line. She talked and coached me through my thinking about how I was going to manage moving house! I am writing this my new place, totally exhausted, symptoms flaring up but just about functioning! I would be so so much worse if I hadn't planned and been supported by Karen!

Here is my top ten tips for moving house when you have a long term health condition and live with fatigue!

Sunday, 13 December 2015

PROMs, PCOMs and mind-melt!

Last week I was invited to the Health Foundation's two day workshop on measuring the outcomes that matter to patients. My tweet from the final day sums it up... 

Since then, I've had a chance to digest the pages of notes I made, and I wanted to blog to share my thoughts and reflections on measuring what matters to people with health conditions (long term, acute or otherwise!).