There is a drive in healthcare
education to use technology and involve patients and service users in teaching
sessions. Combining these two important agendas, I collaborated with a
healthcare sciences lecturer, Trevor Kettle (@TrevorKet). to co-deliver two teaching
sessions using the Meetoo app (and Skype). This a blog of two halves, with my reflections and Trevor's reflections (so do make sure you read both bits!)
These were students on two
different courses at the Faculty of Health Sciences at Southampton University –
both post-graduate, qualified health and social care professionals. The
sessions were both 1.5 hours, and the first was co-delivered in person, while
the second was co-delivered with Trevor Kettle in the room, and me Skyping
in.
The Meetoo App is a platform for real-time polling and
discussion that allows students to share their thoughts and reflections,
opinions and ask questions.
This blog is a collection of
reflections on these experiences. These are twofold:
- the process of using technology and
collaborative teaching as a process to educate
- the content of the conversation we had with
the students.
Underpinning all of this was a
strong equal partnership to co-produce the teaching sessions, the content and
process between Trevor Kettle and myself – for which I am very grateful. Far
from being onerous, this collaboration to coproduce the two teaching sessions
required only a preliminary Skype meeting of about an hour and one or two
iterations of the PowerPoint slides being shared via email. We had a short
reflective debrief afterwards. Trevor’s perspective on it all in included
below...
N.B. This isn’t
formal research, so the data from the polls isn’t definitive but interesting
none the less!
Establishing an understanding
Both sessions started with
open-ended questions about the students thoughts and understanding of patient
and public involvement. Whilst there was empathy with what patients, service
users and carers might experience when receiving care, the majority of
responses showed that their thinking on this subject was limited to people
being involved directly in the care that the professionals were providing,
rather than people influencing care provision at strategic level. When professionals
were wearing their ‘care provider’ hat, involvement seemed to come naturally to
them, but it wasn’t initially transferable to when the professionals were
wearing their ‘leadership or management or strategic’ hats. A&E was the
example raised in both sessions that highlighted this. In an emergency setting,
a patients’ involvement in their own care is clearly limited, but people who
have used A&E can be involved in planning patient pathways through A&E
for example, which is at a strategic level.
This is reflected in two polls
that were done in the first teaching session:
Who had heard of PPI before?
16.67% Yes, I am really familiar
with it
53.33% Yes, I think so but don’t
really know much about it
30% No, not heard of it before
Who sees involving and engaging patients and carers in
partnerships as part of their role?
Yes, certainly, 54.57%
Yes to a degree, 46.43%
No 0%
And a third poll, in the second
session:
How important do you think PPI is for research and service improvement?
Very
important
|
14
|
77.78
|
Somewhat
important
|
3
|
16.67
|
Unsure
|
1
|
5.56
|
Not
really important
|
0
|
0.00
|
Not
important at all
|
0
|
0.00
|
This suggests that in these
sessions, there was a basic concept and understanding of the importance of
involving people, but a degree of confusion or lack of confidence about what
that means in practice. This was clear through some of the very enlightening
questions that were later asked through MeeToo.
Questions and points of discussion
The MeeToo app allowed for
questions that were very honest and quite hard-hitting, and allowed exploration
of some of the most sensitive aspects of PPI.
The issue of
motivation and bias was raised multiple times, as it feels like something the students
are concerned about. Understandably, these are issues that important for their
professional regulation.
What are the
intentions of those involved in [PPI]?....is it always positive? Constructive?
[Their] agenda clouded by previous
treatments?
Whilst I
believe that patient/public interaction is important, there is the risk that
there is a strong bias based upon experience and belief that may have the
'stronger voice'. Obviously, there may
be the same bias amongst the 'professionals'. However, those professionals may
have a better ability to see the other view based upon their own academic
learning and previous research experiences.
Does paying
participates not create bias as well? Participating only to get paid?
The intentions of individuals
getting involved can be very important in determining how they find the
experience of involvement. Good recruitment, role explanation and expectation
management can help with this. The payment question was interesting, as
clinicians are often paid for additional roles, and the payment is actually
very low in real terms, as the work is very sporadic. Again, recruitment
processes can clarify this. It did prove a good opportunity to emphasize the
importance of meaningfully valuing contributions from patients, carers and
service users through different models of reciprocity. The bias of previous
experiences was fascinating, as using previous experiences is what clinicians
do as they become more senior to inform their practice. The key difference was
that patients and carers might not have the academic and professional rigor to
balance that. This is where ongoing support and debriefing from sessions and
meetings can be important for patients involved, so they can reflect on their
own processing of experiences. The conversations that people have when they are
involved are often at a more general level of service improvement, research or
education, and should be suitably facilitated so this doesn’t become an issue.
I’d feel awkward if not able to meet their
requirements… Promise the world, not delivering it!
Faith that the organisation will support the
input and feedback and allow involvement....I don't believe this exists
therefore difficult to fully engage in PPI as feels a little fraudulent if cant
act with best intentions
PPI can be difficult on the front line due to
lack of resources and time. We want to do it!
These were both
positive remarks, showing that the students appreciated how important the
experience for the individual involved is, but highlights lack of confidence
and support they receive in order to deliver that.
We have
strategic knowledge which aids decision-making, service users do not. They may
have great ideas for change management but financially and realistically we cannot
provide.
Representatives
aren't necessarily representative
No discussion
on PPI would be complete without the representation debate, where we want
people to be representative of an average patient, but bemoan their lack of greater
understanding of the NHS. Many patients and carers and service users are
interested in getting involved in PPI because they have a capacity for
strategic thinking. Even if that isn’t obvious, the fresh perspective they
bring can greatly aid decision making too. Part of the conversation is for the
professionals at the table to be open and honest about the boundaries so there
is shared understanding. One student
described this well on an post:
“Sometimes
patient expectations can be unrealistic. The partnership should encourage a
common understanding on both sides of the spectrum. I think only then we can
create real solutions.”
Highlighting their understanding
There were some very good quotes
from the students that helped us see what PPI means from their perspective…
Often
organisations use [PPI] as tick box through easy methods such as patient
survey.... so they look good that they appear to have done it but often find in
reality feedback is ignored. Definite room for improvement!
Axe to grind
people are often only around short term the true transformational patient
leaders remain long term
We use [PPI] to enhance , improve and shape
our services :)
It is striking that these
students acknowledge imperfections in the system and the room for improvement
and feel the potential in this approach, but it is challenging and they feel
the pressure to do this in a meaningful
and appropriate way, while being unsupported.
The added value of the MeeToo app
Across the two sessions, there
was an average of 90 posts per session, and several polls. There was a very
high level of engagement with the app, and the feedback was overwhelming
positive. The key points the students made about the benefits of the app in the
session were:
-
Helpful if
not someone who is comfortable speaking out in class
-
Interesting
to hear more of what others think
-
Good for
questions that might be ‘silly’
-
Gauge how
others are feeling through polls
-
Useful to
share links to websites and resources discussed
-
Helped the
conversation stay honest
-
Anonymous
comments
-
Good balance
of face to face and technology
The only point for consideration
in the future is about the challenge of listening to the discussion and
following questions on the app. It might be that a follow-up session via the
app could allow for further exploration of other questions not answered, and
allow students time to process other questions while focusing on the discussion
at the time in the session.
The graphs were very visual and
normalized how they felt about PPI.
Being able to add polling
questions enabled us to respond to the direction of conversation in the room
and ask questions in a non-confrontational way to test the students approaches.
From a delivery perspective, it
made the preparation easier as discussions could take care of themselves and
slides needed to be simplified to just the key points of models to refer to in
discussion.
PPI Co-delivery
As a non-academic ‘lay’ educator,
these sessions felt very comfortable, for a range of reasons.
It was a very easy platform to
use, and enable me to pick questions I felt most comfortable answering and that
were the most important. This was real time ‘patient’ influence of the teaching
agenda in collaboration with students!
It changed the dynamic from a
lecturer knows best preaching to students to a more equal relationship of
mutual interest and appreciation. This felt important as it directly models the
behavior shift central to person-centred care and patient partnerships at all
levels.
It enabled the student to ask
questions of my experience comfortably, which meant they were acknowledging the
assets I brought as a patient, and allowed me to acknowledge tier assets by
hearing their experiences, again modeling an assets based approach which they
might be unfamiliar with in a safe way.
Trevor’s Reflections…
I am a full time academic working
in the Faculty of Health Sciences, university of Southampton. I have had the
pleasure of working in partnership with Anya on a number of occasions in
different ways, particular on jointly delivered teaching sessions. Anya has
explained previously how we have begun to work with a new audience
participation system called ‘Meetoo’ which has in my opinion enabled students to
be connected with PPI in the lecture room to a much richer degree than has been
possible up to now. Traditionally, in education we have used the tried and
tested ‘raise your hand if you have a question’ format to allow students to
communicate with the speaker. This can be successful in some contexts although
it is easy to fall into the illusion that you are giving full opportunity to
all students to ask questions and express their views. This is not so. Some
students can be anxious about asking questions on such a public stage as they
can perceive to be judged by their fellow students and also by the lecturer in case
they are criticised for asking a ‘silly’ question. This usually results in the
same few more confident students asking questions and giving comments. Meetoo
(and other similar systems) offers the opportunity for ALL students to use
web-based devices (Smartphones, etc) to send text questions/comments directly,
in real-time, to the session presenter completely anonymously. If a patient expert is leading the session,
they will receive the questions on their own device and can choose the
questions they would like to answer and comment on. All users see all
questions. An added feature is the students can ‘like’ each other’s questions
and the patient can order the comments in order of ‘most likes’, very useful if
a large number of questions are received and there is not time to answer all.
However, all comments can be downloaded after the session to be answered via
text if required.
This system can be enhanced
further by utilising Skype as a way of connecting patients geographically
distant from the university campus. I have worked with Anya on developing this
now to a fine art! In order to eliminate travel time and expense, Anya has more
than once skyped her presence into the lecture room directly from her home
location. By using Meetoo on her tablet device, next to her computer, she has
access to all student comments as they are typed by the students. She is
therefore have control over which questions to answer as explained previously.
What implications are there for
PPI in healthcare education? Combining technology
in creative ways to enhance and enable a deeper level of patient involvement
within a lecture environment can enhance a deeper learning within students, in
my opinion. This have implications however to how academia interfaces with
patients. My relationship with Anya is based on mutual trust, partnership and
collaboration. I never consider myself to have a higher or more important
knowledge level, even though I have a list of professional and academic
qualifications. As a patient leader, I fully respect the experience and
knowledge Anya brings to our projects. We are equals. I bring another kind of
knowledge which includes teaching experience that enables me to construct
learning environments described above that enhance and enable a deeper level of
engagement between patients and learners.
Patient involvement in healthcare
education is here to stay. As educators, we must move away from the model of
wheeling a patient onto the lecture stage to ‘tell their story’ and be
metaphorically ‘prodded’ by students. Using technology we can enhance the
ability of patient leaders such as Anya to question and ask students to think
about the issues that matter to patients and to take PPI into more strategic
levels where real change can occur. I
want to thank Anya for her commitment to being involved with our student’s
education and look forward to many more collaborations.
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