Despite all my complaints as a
teenager to the contrary, Dorset is quite forward thinking, and it has
demonstrated this in its approach to transformation in the local NHS. In
mid-2014, the Dorset Clinical Commissioning Group (CCG) decided to take
pre-emptive action to maintain health and wellbeing, quality services and to
avoid a looming gap in local NHS finances and began a Clinical Services Review
(CSR). With the aim of supporting people in Dorset to lead healthier lives, Dorset
CCG recognized that significant, meaningful and effective engagement and
involvement with local people who use services was essential. As with any
project on this scale, engagement and involvement needs to be multifaceted. I
was most involved in one these facets, as Chair of the Patient, (Carer) and
Public Engagement Group (PPEG).
As the national conversation
moves apace around Sustainability and Transformation Plans (STPs) and calls for
engagement, involvement and coproduction grow louder, I wanted to share our
learning in this context. We didn't get everything right, but I am really proud of the impact of the PPEG.
In Dorset, the STP has been build
on the CSR programme, which covers the same geopraphical footprint, and has
been out to formal consultation.
The journey of PPEG as a group of
people who are all passionate about health and wellbeing in Dorset has been one
of rich conversations that bring together the different demographics, geography
and diversity of Dorset. Our role was as an independent critical friend to the
CCG, to provide oversight, advice and guidance across the CSR and how and when
to have conversations with the wider public about the CSR.
Here are the key points we learnt
along the way…
Co-designing how the group fits in the overall structure of the
programme
A group with such a strong
membership needed strong links to the programme, and this was co-designed. We
looked at who could take our message to different forums, such as the Governing
Body, and ensured we had seats at the most important tables to take our
discussions to the heart of the CSR. As ever more complicated flow diagrams
were created around the process, the PPEG was always included from day one. As
strong and independent as our group was, it was no isolated island.
Completing the feedback loop (You Said, We Did)
As a group, we had 20 meetings
over the two and half years, and maintaining motivation and momentum was really
important for us - we needed to ‘see’ the impact of our conversations. We
started meetings with You Said, We Did sessions, to challenge speakers to be
able to update us on how they had used our conversations to effect change. This
was our real-time thermometer of how meaningful our meetings were.
The key outputs of the PPEG were:
- Co-designing the evaluation criteria of
different models of hospital configuration
- Calling for the Need to Change document to
outline the rationale for the programme to engage local people
- Creating principles to guide meaningful and
effective consultation
- Creating Guide for Person-Centered
Discussions to be used across all transformation work-streams
- Advocating for further detailed work on
community modeling, greater integration with social care and mental health
services.
Sense of collaborative ownership of the programme
Interestingly, we didn’t realize
how valuable this was until we became victims of our own success and another
programme of transformation locally wanted to link with PPEG. This was sort of
shoe-horned in, rather than co-designed from the outset. As a group, we felt
confident with the remit and scope of the CSR and the work streams within it.
With additional programmes added to our work, we felt we lost that sense of collaborative
ownership of the programme that was so important. In the context of our local
STP, with three components of Integrated Community Services, One Acute Network
and Prevention at Scale, this was too much for us to feel that we had a grip on
to make a meaningful impact, and there wasn’t the sense of relationship that
helped us plan these sessions. This has directly informed plans for the next
phase of engagement with the STP.
Planning meetings
Each meeting took considerable
resource from the Engagement Lead to ensure there was a clear sense of purpose to
the meeting, an ‘ask’, and that it would be meaningful. We avoided
presentations and question & answer sessions, but that took time! There was
also important administrative support commited by the CCG to ensure the
necessary paperwork around meetings was sorted, which was welcomed and valued
by the members.
Strong relationships
At every level, the PPEG
benefited from strong relationships with various different groups within the
CCG.
One of the Lay Members of the CCG
Governing Body was a very active and valued member, feeding back the GB the
points raised by the group. This link was very valuable, and meant that the
Chair of the CCG has a good understanding and appreciation of the PPEG, and met
with us when requested.
The key players in the CSR
project management team were all well known to PPEG as a group – they would
attended meetings themselves, rather than send junior deputies, and felt
approachable. This was exemplified in how they used the PPEG feedback to start
every meeting with over 150 clinicians through the process, and included us as
equal partners with local Trusts on panels.
Most of our day to day contact
was through the Engagement and Communication team, from director to leads and
officers. This relationship was central to the success of the group, as it was
faciliatory and enabling without influencing us.
The role of Chair was contracted,
and reimbursed in line with other external contributors to the CSR such as
clinicians, which was important as it clearly demonstrated the equal respect
patient voice was given within the CCG as an organization.
Importance of briefing speakers
As the programme progressed and
different speakers came to present various aspects of the CSR, we became very
familiar with the narrative and facts. So when new people came to present to
us, as patients, carers and public people, we found ourselves being told what
we already knew again and again. It was good that they were explaining things
in a non-clinical way, acknowledging that we were a non-professional group, but
it was tedious and devalued the knowledge and experience we had built over the
months as a group. In some situations, the information hadn’t been tailored,
and our underlying assumption was that they had seen patients and carers as a
homogenous group who needed the basics. The reality was very different – different
messages are needed for different people. To address this issue in the context
of our meetings, we created a brief for speakers, which among other things,
asked them to check what level of understand we already have on a topic before
hand. In the wider level of the consultation as planned, we helped the CCG have
different levels of detail on the proposals, so people could access the
information that matched their interest, time and understanding.
As the CSR is now evolving into
the STP, the next phase of the engagement process is building on all of this
learning. The more the CCG valued the PPEG, the stronger and more influential
the group became, which in turned increased the respect and importance of PPI
within the CCG – a great experience of growing and learning together.
None of the achievements of the
PPEG would have been possible without the members of the group, the support of
David Jenkins, Lay Member, and especially Frances Aviss – thank you all.
A lot more this CCG sought after this PPEG, this tougher and even more influential this collection evolved into visit the site, which often with transformed enhanced this esteem in addition to fact that PPI in the CCG – an incredible experience of rising in addition to finding out in concert.
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