Friday, 27 April 2012

GBS Annual Conference

I recently attended the GBS Support Group Annual Conference. It was the first time I had been to a patient day, and it was interesting.

Talking to patients, they found it of enormous value both being able to meet others with similar experiences but also to gain information from the high-quality medical speakers during the day.

Not surprising, but still shocking - over 50% of neurologists had not heard of the GBS Support Group! I know that doctors can not know all the support groups for all conditions, but one would expect that they would have thought that every condition would have a support group!

There was a good talk on rehab for GBS patients - it explained the process of clinical trials well, and highlighted the problems of studying such a rare condition.

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