Talking to patients, they found it of enormous value both being able to meet others with similar experiences but also to gain information from the high-quality medical speakers during the day.
Not surprising, but still shocking - over 50% of neurologists had not heard of the GBS Support Group! I know that doctors can not know all the support groups for all conditions, but one would expect that they would have thought that every condition would have a support group!
There was a good talk on rehab for GBS patients - it explained the process of clinical trials well, and highlighted the problems of studying such a rare condition.
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