HEA Powerful Partnerships Summit

On Wednesday this week, I attended the Higher Education Academy's Powerful Partnerships summit in London. It was a day to explore how partnerships (between many different people, but you can guess that I was there championing patient partnerships!) can support and promote excellence in medical and healthcare education in the UK. There were plenty of tweets during the day (#ppsummit) and food for thought. I was asked to present providing a patient perspective on what needs to change in education of health care professionals.

To disclose or not to disclose?

This post isn't about being secretive, but about the boundaries of privacy and thinking about what we expect from patients when they share their experience and insights. So, I've been wondering for a while..

How much of my role as a patient leader is about my conditions? Is disclosing them essential to my story, insights and contributions?